The MyData4Pandemics is a MyData thematic group that came to fruition with the advent of the shocks, changes, and challenges in society from the coronavirus pandemics. Citizens have been the forgotten stakeholders in this crisis; we need individual-centric data solutions, driven by MyData principles to be better armed for current and forthcoming outbreaks.
MyData4Pandemic’s proposed ICAWAS solution built upon the 4P model (People-Public-Private Partnership) was awarded an honourable mention in Sitra’s “Fair Health Data Challenge” on June 9th, 2021. Press release here. The judges remarked:
“In complex and difficult-to-manage crises, it is easy to forget the individual’s responsibility and perspective. This solution is exceptional in making them the starting point of all planning activities.”
There is no need to trade data privacy in the name of the good during cross-border health threats; decision-makers should leverage emerging human-centric solutions to meet pandemic data needs while respecting citizens’ rights.
Individuals who are empowered as responsible citizens, minimize the negative impacts of pandemics on the economy, health and education all while preserving human rights such as data privacy, freedom of movement, and equitable access to healthcare.
Today, all solutions – such as mobility restrictions, contact tracing, or equitable access to treatment – are problem centric, siloed and designed FOR the individual rather than BY the individual; their limitations and negative impacts on human rights are apparent. We call for decision-makers and politicians to support the development of individual-centric approaches to support and complement to pandemic-related challenges.
Existing and emerging solutions, based on the MyData Operators reference model, allow us to develop and deploy these individual-centric services where:
Concretely, MyData4Pandemics proposes to develop an individual-centric advisory and warning service complementing the existing and emerging MyData Operators approach and building on MyData principles.
Mobility: Responsible freedom of movement during pandemics
Post Marketing Surveillance: Increased safety and try in mass vaccination programs
The Needs for Data Commons
MyData4Pandemics overall proposed solution
Planned deployment steps and stages
Available technology components
Position Papers & Blogs
Our community has experts of varying backgrounds, interests, and degrees of experience. We aim to support and facilitate an interdisciplinary and safe space where everyone can share their thoughts, views, and ideas when working towards our vision of a human-centric pandemic data-management solution. In particular, we are looking for people with the following skills, willingness to participate, and motivation to donate their time working on:
Join MyData Global
If you as an individual believe in these efforts and wish to support MyData, join MyData Global as an individual member, the membership fee model for individuals is “pay-what-you-want” and we welcome with enthusiasm all kinds of contributions! In addition, if you represent a company or an organisation, we need your support and want to collaborate! Join MyData Global as an organisational member and get in touch with general manager Teemu Ropponen, firstname.lastname@example.org, to plan exactly how we can support each other through and during this time.
Our MyData Slack channel is open for all interested persons to join
You can send us an email at pandemics[at]mydata.org or follow up on Twitter @mydatapandemics
If you would like to know more about what we are doing, or would like to give feedback about a particular activity, please fill out the form and someone from the MyData4Pandemics thematic leadership group will get back to you. Anonymous feedback is also possible. All feedback is available to the MyData Global staff as well as the MyData4Pandemics leadership.
Rewatch the MyData vs. COVID-19 calls to #MakeItHappen and #MakeItRight
The series of calls took place between 25 March and 4 June 2020. Altogether, 8 calls were organised with over 30 initiatives presented.
Read the Blog Posts: