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MyData case: Data4Life Initiative for preventing spreading of the COVID-19 and other crises

Organisation: iGrant.io – igrant.io, MyData Sweden 

Country: Sweden

Domain: Pandemics and Crisis Management

Target group:

  • Public Institutions
  • Citizens

Keywords: Data protection, gdpr, consent, data exchange, data for good, data for life, corona, covid-19, pandemic

Contact: Lal Chandran lal(at)igrant.io

Relevant link(s):

Case description

Data4Life Initiative for preventing spreading of the COVID-19 and other crises.

The solution harnesses the power of many to combat pandemics and other crises without compromising people’s privacy or data rights.

Organisation

Data4Life is an open-source initiative that iGrant.io and MyData Sweden started together. A cloud-based platform that uses consents (aka user permissions), among others, as the legal basis to enable data exchange across organisations based on a data regulatory compliance framework.

Value proposition

The ability for individuals to self-assess, contain and reduce the risk of being infected. 

Fewer concerns of surveillance: Encouraging data altruism due to transparency in the use of data

Better access to data → Better informed decisions.

Problem

  1. Lack of data from citizens due to the concerns of data misuse during a crisis.
  2. Lack of reliable scientific evidence for effective public health recommendations.
  3. Ineffective measures by authorities due to lack of adequate data.

Solution

  1. A trustworthy means for citizens to contribute their data without compromising privacy.
  2. Getting risk-based scoring and alerts if citizens are susceptible to infection based on their health parameters. 
  3. Helping the authorities so societies can get back on track.

Illustration

Video presentation and demo

 

MyData Principles

Principle 1. Human-centric control of personal data

Principle 2. Individual as the point of integration

Principle 3. Individual empowerment

Principle 4. Portability: access and re-use

Principle 5. Transparency and accountability

Principle 6. Interoperability

How and which MyData principles are you incorporating most?

Principle 1.

Provides complete transparency giving the individual an option to opt-out/in anytime. Provides DSR requests to delete the data, download the data (data portability) etc.

Principle 3.
The individual is in control over the data. The solution is build on top of a consent and GDPR compliance platform provided by iGrant.io.

Principle 3.
Provides DSR requests to delete the data, download the data (data portability) etc.

Principle 5.
Provides complete transparency giving them an option to opt out/in anytime.

Data types used

  • Personal data 
    • For providing risk-based recommendations
    • For performing wellness assessment
  • Historic data (e.g. DNA, Location Data) 
  • Location data

Organisations involved

How can the MyData community help you reach your goals?

  • Community driven development.
  • We need trust to seem credible from the societal point of view – how to create trust from end users point of view so they enable data flows?
  • Support with standardisation to show a common way how software should be developed. One can trust those who follow some trustworthy rules and standards.
  • Legal, technical and ecosystem challenges.